Monday, October 5, 2009

Diabetes Game and overseas...

Howdy from Munich,

Past week has been pretty rocking. First was EASD in Vienna which gave some great promise to our Euro/World Wide expansion, but also to know that there is still much work to be done so that the diabetes world over here learns about Team Type 1. Had great meetings, hung out with my buddy Kyle Rose, Jay D. (who taught me of a few "Dunniganisms") and many others. It was a grand time for sure.

I read the comment by "jpnairn"
re: goal of sub 5 A1c for type 1 diabetic.
Reminds me of anorexia.
Sub 6, I'd give you an Attaboy. Sub-5, I can't encourage. Sure you can do it. You could probably go sub 4 if you really tried.
The goal should not be to get it as low as it can go. The goal should be to get it to a healthy level.

If I had a 4.8 with a lot of dangerous lows, then I would agree. But, I use "The Best" treatment and technology out there. I do not suggest anyone set their goal at sub 5, and if they did aim for that, to use the exact same stuff (FreeStyle Navigator, basal and fast acting insulin, Dex4) that I do. I am OCD, and I channel that OCD behavior towards my blood sugar. 69 is too low, 119 is too high. I check, and I correct. Some days things are smooth, and that means I do 5 shots. Some days (yesterday) things are tricky and I do 13 shots.
My 28 day average is 102, with 38 mg/dl standard deviation, 88% in target, 4% above target, and 8% below target.
I am trying to lower the standard deviation, and the time below target. My last Glycomark test, which measure the variability in your blood sugar was 11.1, and above 10 is considered excellent.

The motto of Team Type 1 is "A1C: Strive for 6.5" I stand by that. If you can get to 6.5 successfully and safely, then aim for 6.3, then 6.1. The fact of the matter is, that people without diabetes have A1C's between 4.0-6.0. If you can get to that range, then odds are you will have 0 complications just like they do.

Lastly, I am on my 9,900th day as a person with diabetes. I want to be the best I can be, and stay motivated. For me, motivation comes with goal setting, and working towards them. If I set an easy goal, then it is not really worth the effort to achieve it. Goals are meant to be challenging, meant to push, and it was no easy task to lower my A1C like that. It took work, and I am damn proud of the result for my efforts.

So about this travel thing: Flying for a 6 hour time difference can mess things up. Being on an Omni-Pod is easy, as the basal stays the same, or can be micro adjusted. Using basal insulin can be a bit more tricky. So after screwing up a few times, I decided to split dose my basal insulin. This started a week before the trip to get each dose to about even. And then on the night time dose on the plane, I did 1 extra unit to make up for the lack of activity. Then the morning dose was also 1 extra unit, which was too much of an increase, so I was correcting via food a lot...

A couple of runs the first 2 days, and jet lag was gone. Funny enough, my body is so not used to running so both times required a big bolus after even though I ate nothing during the run. I reckon as I get back in shape (long way to go) that this will stop eventually stop. So now the fun begins of trying new stuff, screwing up, adapting, and getting on track. Gotta do something to keep this diabetes game fresh and fun! In the end, I know that running will help all work well again, so really can't wait.

So whatever your A1C is, that is great cause that is where you are. But where you choose to be 1 month from now, a day from now, a year from now is all up to you. If your goal is to get from 10 to 8, that is great. From 8 to 7, congrats. I would say to set a goal that will push you to make the adjustments necessary to get there. Good luck!!

And Have a great day!!!

Phil

8 comments:

Thierry Douet said...

Hey Phil, I think it is great to have the A1C you have. I am sort of like you with probably an OCD type mind and therefore always have to set my self a new goal, of course on the better side. I just got my last A1c and it is back down to 5.5%. My goal is 5.0% with little lows. I am back on the CGM, still on the pump with apidra and I am doing pretty good. The only lows are when I over treat or over correct, and the highs are when I eat too much! So all things that I can control really.
Testing many times in the day is key, as CGM are not (at least not my version) very accurate yet. But I make it work with what I've got.
Again, meeting you back a couple of month ago really added to my confidence that my goals were not as crazy I some had tried to tell me. So I am sticking to them, will continue shoot for a cycling season and athletic level as good/better as pre-diabetes and an A1c of < 5.0%.
Keep blogging for all of us, giving the details of what works for you. And let me know when you are back in Seattle. Thank you.

james stout said...

hey phil, hope you enjoy Europe. Take some time to appreciate the communist health system which gives me insulin for free!

Hope to see you in Tuscon in Novemberfor the JDRF thing.
james

Unknown said...

Take some time in France to understand their health care system -- again -- no one lacks for insulin - or care

Unknown said...

Like Jerry, I originally thought your goal was too aggressive.

However, I think the key is % of readings within target.

Consider, my last A1C was 6.3, but the % of lows I run is greater than you, so I'm actually at greater risk of having problems than you.

I think the potential problem is the perception that you're chasing a lower number FIRST and a tighter deviation SECOND. Seems to me the latter might actually be more important (with the given that the goal number should be a healthy one).

One of the things I've noticed since switching from Humalog to Apidra is that I've got some wicked cool flat lines between meals, which helps keep the deviation to a minimum. Once I can safely get that line flat, then it makes sense to bump it down.

M

Unknown said...

While you are there...

http://www.pbs.org/newshour/globalhealth/july-dec09/insurance_1006.html

Tim K said...

Marcus pointed out something my doctor did, that the deviation (especially rapid changes) are far worse that a steady , but slightly elevate A1C.

So my goal has been to slowly reduce my A1C, now 5.8, while at the same time I am actually more concerned about spikes and lows. Which is especially hard after rides like this last weekend, 100 miles of cold, wet and winds over a hilly course. Being a Type 2 on oral meds only also makes this a tricky dance at times. My current 14 day average is 117 :(

jpnairn said...

OK.
I think it's great that Phil Southerland got an A1c of 4.8, which indicates an average reading of around 92. (I found several tables and calculators online which returned a variety of values.)
The key thing is that he did it without "a lot of dangerous lows."
I assume he has a rational definition of what would be "a lot" and there are reasons some lows are not "dangerous."

pieter said...

any plans on participating in the Tour of california next year?